Skip to main content

Writer Spaces: JoJo Tabares

Today, we introduce another new series - Writer Spaces. On Tuesday, we explored "A Day in the Life of JoJo Tabares" and today, we get a glimpse of JoJo's writing space.

JoJo’s Writing Couch
by JoJo Tabares 


When I was a young girl, I could write ANYWHERE!  Just give me a purple notebook. I’d write sitting on the floor, on my bed, upside-down. I even wrote stories in my dreams. As a homeschooling mom, I wrote my Art of Eloquence speech communication curricula on my desk top computer following the notes I had handwritten in my purple notebook.  It wasn’t the most comfortable place for a writer who stands 5’ nothing. I haven’t met a chair yet upon which I didn’t have “dangling feeticiples.” I often sat on my legs because it was a smidge easier for my arms to reach the keyboard.

As I got older and collected several more diagnoses, sitting in one position for too long resulted in neck pain that radiated up to my head the likes of which couldn’t be calmed by an ibuprofen tablet the size of Milwaukee. Fibro eventually took my ability to contort my body with any regularity and my writing couch was born.

One purple laptop later, and I was comfortably seated with my feet up, a purple blanket
at the ready in case of a chill and an elegant Chinese fan lying in wait for the inevitable hot flashes. Everything a chronic illness blogger needs for her day is within reach.

On the table beside me is my purple thermos of ice water and four TV remote controls for background noise—unless I push one button too many and end up listening to static and watching screen snow. In that case, I turn on my YouTube favorites and wait for my husband or son to rescue me from my technological faux pas. I’m perched in the perfect location to view anyone coming to my front door requiring my attention and I’m within earshot of an over boiling pot of spaghetti for those inevitable brain fog moments when I forget I’m cooking.

One of the writing couch’s adaptations was achieved entirely by accident.  My husband had taken off the legs the last time we moved in order to more adequately use space in the moving truck. Several months after setting up house this time around, it suddenly dawned on me that my feet actually touched the floor! We were able to find the legs tucked away in a box in the basement, but by this time, I had become accustomed to not feeling like a toddler, and my husband had become accustomed to not having to assemble anything else.

After each of my five recent surgeries, it was my writing couch by day and my bed by night. My writing couch remains my favorite writing environment catering to my specific chronic needs even as they are ever changing. From my writing couch, I cannot only write with relative ease, but I can put aside my laptop and rest whenever naptime strikes. (Okay, I guess I still am somewhat of a toddler.)


JoJo Tabares is a Christian chronic illness blogger at www.LifeBeyondSurviving.com and runs a Facebook group by the same name. She’s been diagnosed with several chronic illnesses/conditions, but she sees the humor and joy in just about everything and shares how others can find the light God has INSIDE the chronic tunnel. 





Comments

Popular posts from this blog

Guest Post: 28 Years and Counting by Carrie Leeth

Earlier this year, TMP Books put out a call for submissions for two anthologies, requesting stories from cancer warriors/survivors, and from cancer caregivers. We received several submissions, but not enough to fill either book, so for now, the books are postponed. When I notified the writers who had submitted, one of them suggested running the stories on my blog, and I loved the idea. My goal was to share people’s stories, to give encouragement and hope to other cancer warriors and caregivers, so why wait? I’m sharing the stories each Tuesday, in the order they were submitted. Today, I welcome my sister, Carrie Leeth, to the blog, sharing her story as a lifelong caregiver: 28 Years and Counting In 1994, my father had been diagnosed with throat cancer and had been battling this for some time, losing weight, not able to work. He had a feeding tube placed before he started taking radiation treatments two times a day, for six weeks, so my brother and I took turns driving him to treatment...

New Writing Outlet - Come Join Me!

 Dearest Blog Readers (and yes, I do mean "dear" to me!), I realized it's been a while since I've updated the blog so I thought I'd come share why. At the end of January, I began writing regularly on Substack . My posts go live in a newsletter on Tuesday mornings (this week, it was Thursday, but that was just a mistake on my part.) Tuesday, 3/11, I will post my latest health update, but most of the time, I'm just writing essays about life.  I hope you'll come over, subscribe, join my private chat, and let me know what you think! (It's all free - I don't charge for the newsletter or the chat.) I look forward to seeing you there.  PS. I have some fun and exciting news coming in a couple of weeks, too!

Our Home Health Care Experience

Blogging got away from me this summer. At the end of July, I got sick with what the doc eventually said was either the flu or covid, but it was too late to test by that time. Then Tim got sick and ended up in the hospital for a week with covid and double pneumonia. He’s home now and recovering well - I’m grateful and he’s happy to be home again. I decided to share our experience with home health care. Since all of this was new to us, I don’t know if our experience is the norm, but thought I’d share in case it’s all new to someone else. The hospital filled up while Tim was there, so once they got him on his feet without oxygen, they sent us home because they needed the bed. But they ordered Home Health Care, saying he needed physical therapy, and that’s what we expected. Tim left the hospital on the 19th. To simply things, I’ll list the dates and duties of Home Health below (we also had 3 doc appts scattered in the middle of all these dates, and perhaps only introverts and hermits like ...